Impacting the Cause: Sarah J. Roberts
Sarah Roberts was diagnosed last year with MS. Almost immediately, she signed up for Walk MS because "action and activism" helped her to deal with the fear and uncertainty of her diagnosis.
She candidly shares her story about her first Walk MS experience wearing an "I Walk with MS" badge, and how she felt the day of the event.
Excerpt from Sarah's story: "I turned with our materials and grabbed Ruston’s hand. We
walked to a quiet area to write our names and pin our numbers to our backs. We
had to list the year of my diagnosis and my name on both of our numbers. I
supposed it was so all the participants could see and know that it was people
like me they were helping with their donated time, money, and the labors of
those energetic, sculpted physiques.
Professional and recreational runners stretched like the rest of us—yes, I am one of
them now—concentrated on our posture and holding our heads high as we made
silent vows not to cry."
>>Read Sarah's Full Story
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Upcoming Events
2/28 Women on the Move, SLC
3/2 -3/8 MS Awareness
Week
3/3 MS 101, Ogden
3/3 Intro to Yoga & Meditation, Hailey
3/3 Cognifitness, Meridian
3/3 Mood & Cognition in MS, Draper
3/3 Team Captain Open House, SLC
3/5 MS 101, Provo
3/5 MS 101, Twin Falls
3/6 Orange Out Night at Grizzlies, SLC
3/12 Mood & Cognition in MS, Park City
3/17 Managing MS Bowel & Bladder*
4/18 Walk MS, Boise
4/25 Walk MS, SLC
See All Upcoming Events >>
*Online
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Families and MS
Multiple sclerosis has often been described as
the “uninvited guest” who unexpectedly shows up at your house, takes up space
in every room, and never leaves. Every member of the family will have his or
her own reaction to the arrival of this guest, and each person will need to
find a way to make peace with it.
Being aware of the
differing ways that MS impacts the lives of everyone in the family is important,
and we are here to help you understand them:
- Communication: Each family member will most likely react differently,
and these conflicting reactions may cause a disruption in the normal family
rhythm. For this reason, communication is
imperative to help each person cope with the changes MS causes. It is not only stressful for the person
diagnosed with MS, but also for his or her loved ones. Together, ask the
difficult questions, discuss any concerns, create a family support plan, and
know the resources available so that the person with MS can live their best
life.
- Resources: Don’t wait until there’s a crisis to seek
help; all families can use help at one time or another and many resources are available to learn, connect, and get support.
- Acceptance: For individuals diagnosed with MS, an ongoing
challenge will be to find ways to help the important people in their life
understand MS — and to realize that although MS in now part of their life, it
isn’t all or even the most important part.
- Reactions:
Because MS is not understood by everyone, some people may not react kindly to
someone affected by MS; but this is the exception. It is important to remember
that making connections with others with similar experiences can make a big
difference. Connections can be made by joining one of the many local events
like Walk MS, Bike MS, or other local events that bring people together.
Connections can also be made online at msconnection.org and
by joining the group: Utah-SouthernIdahoChapter. >> Go now >>
Contact us at for information about
our Chapter or with any questions about resources by calling 800-344-4867 or
visit MSutah.org or MSidaho.org
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Volunteer
Volunteers Wanted:
Volunteers are critical to our success! Whether you are looking for opportunities to give back to the community, or if our cause has a more personal meaning for you, we'd love you to join our team of Volunteers!
Opportunities:
Women on the Move is February 28, 2015 and we are still in need of volunteers.
Love Utah Give Utah is March 26, 2015. If you're interested in being an ambassador in your community for Utah’s statewide Day of Giving, let us know by contacting getinvolved@nmss.org.
Additional opportunities are available to support fundraising events, help people living with MS, contribute professional skills and much more. To learn more about volunteer opportunities, click here.
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Relationships Matter in February
Over
Valentines Day weekend, our Chapter hosted a two-day Relationship Matters
workshop for couples living with MS in Salt Lake City. Fifteen couples
participated. It was facilitated by a local couples' therapist, Kate Scribner,
LCSW, and was based on materials developed by the National MS Society.
Throughout the weekend, couples discussed ways to enhance communication and
improve conflict-resolution skills. For many couples, a highlight of the
workshop was when they had the opportunity to break into two groups – one
group for partners living with MS, and one group for care partners. Each group
then discussed challenges with each other that they found difficult to bring up
with their partners.
For many partners, this was a cathartic experience wherein
they learned that they were not alone in facing similar challenges! At the
close of the workshop, the group decided together that they would like to meet
again within 6 to 8 weeks to check in with each other to discuss the progress
they have made and any issues that have risen along the way. One couple
remarked, “We didn’t realize we had so much we could work on to improve our
relationship, and we are excited to get started!”
The Chapter will be hosting
its second Relationship Matters program in Boise at the beginning of May. Stay
tuned for details or contact mykenzie.hydo@nmss.org
for more information.
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MS Awareness Week
MS Awareness Week is
March 2 - 8 and people everywhere are creating connections stronger than the
ones MS destroys.
During this special week, take action to help others learn
more about MS and what they can do to make a difference:
- Go to MSconnection.org and create your own connection image to share with your network and include in our
gallery. Then explore the gallery to learn about the many connections others have shared to help
us end MS forever
- Another creative way to take action is by emailing 5 people your “I Connect” story and encourage them to do the same. Don't forget to also email it to us at Utah.idaho@nmss.org
- If you share on social media, use #Connect4MS
Visit MSconnection.org
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MSidaho.org • MSutah.org • 800.344.4867 • utah.idaho@nmss.org
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