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Real accounts of people living with multiple sclerosis.

Click on the photos below to read stories about our local clients.

Read about one person's success with professional counseling, and how we can help.

Alison	Betty	Bill	Carlyn	Darren	Dave
Dawn	Frank	Gabriel	Helen	Jeanne	Karen
Keith	Kevin	Lee	Leslie	Madeline	Mary
Meredith	Michelle	Nan	Rabiah	Rob	Sally
Shirley	Stephen & Scott	Tim	Tonetta	Tricia	Vikki

Though the cause of multiple sclerosis is not known, it is a disease of the central nervous system typically diagnosed in the
prime-of-life years, ages 20-50. MS is the most common neurological disease leading to disability in young adults. To learn more about MS, chapter programs and services, fundraising events, sponsorship/underwriting chapter activities, or to donate, email stories@mspacific.org or call 800-486-6762.

Alison's Story

One July morning two summers ago Alison (“Ali”) couldn’t get out of bed without feeling the world was spinning. The next day the whole right side of her body was numb and tingling. A few days later she went to urgent care, and was referred to the ER for further tests that included magnetic resonance imaging (MRI) of her brain. It was sometime over those frightening few days that she learned her symptoms might mean multiple sclerosis. Ali says, “It was scary because I had no information about what MS was and what it meant.”

It took a week before she was referred to a neurologist, who diagnosed her with MS that day. She promised herself that she’d become educated about her disease, and do everything she could to maintain a healthy lifestyle.

Ali remembers, “I also began to look for a challenge, and found it when I discovered Challenge Walk on the National Multiple Sclerosis Society website.” It was too late for her to sign up for the 2011 walk, so she volunteered to cheer on the walkers from the sidelines. She recalls, “That experience inspired me, and I signed up for Challenge Walk the following year; in the meantime, I completed the 2012 Walk MS at Legoland, and loved it! It was great to see my team members 30 of them there to support me and everyone else who has to deal with MS in their lives.”

Ali finally got her chance to participate in Challenge Walk 2012. She recalls, “It was so much fun meeting new people and challenging myself by fundraising and walking 50 miles.” Now she’s getting ready for MS Challenge Walk 2013. Members of her family are helping, training right there with her. But she also keeps learning about the disease she has. Ali registered for a Newly Diagnosed Seminar, and signed up for a support group for people with MS.

By now, Ali is an experienced fundraiser, too. One of her fundraisers is a garage sale, and her family and friends are always willing to help with fundraiser parties. She says, “My roommate and I plan the sale together, and my mom flies down from Washington State to help. Last year was a two-day sale and party, and we made an outstanding amount of money. I have more plans for this year’s garage sale, so look out!” Ali is planning a golf tournament; also coming up is a jewelry party and a candle party, both planned by Ali and her mom.

Ali has learned a lot in just two years. She is keeping her promise to herself to exercise and come to terms with this disease, and is feeling confident enough to tell her co-workers about her MS. She explains, “I tell people at work that I have MS, explain what it is and how it affects me.”

Ali’s also learning over and over again what a great support system she has in her family. This year they will be there mom, dad, and other family members as volunteers, and as part of her team. She says, “My family has been the biggest support system I could ask for, and I am so blessed to have my family have my back.”

Betty's Story

Betty started feeling as though something was “wrong” with her body in 1980. “I was holding my 6-month-old daughter and feeding her when I noticed some strange sensations. I feltnumbness with both of my legs and it continued up to the middle of my back. I then noticed numbness on the side of my face and across my forehead. When I walked barefoot on a cold floor, my feet would hurt, like they were sun burnt,” remembers Betty.

Soon after, she went to see her doctor and described her sensations. He didn’t know what was going on. She saw a second doctor who did numerous tests, and when the results came back, the doctor told her that she had multiple sclerosis. “I was 28. I didn’t know anything about MS. I was a mother of three, aged 6 years, 2 years, and 6 months, and I had to take care of them, my home, and my husband.” Betty describes her symptoms over the years: “My legs became very heavy and sluggish with the heat (or extreme cold), which caused me to walk slower and took more energy. Balance issues made me give up heels and go into flats.”

Betty and her family moved to Laguna Nigel, where Betty continued to work. “I would start out writing very nicely and then it became harder to move my hand. I began to have difficulty remembering the spelling of simple words, or people’s names, conversations or phone messages.” Betty soon left her job and found her way to the chapter. “I didn’t take advantage of the chapter right away as I was still working. But after I had stopped work, we had to make changes in our life.” She attended a support group and obtained referrals for doctors, both medical and emotional. Additionally, Betty attended many seminars including research symposiums, women’s wellness weekend, and the couple’s weekend. She is now a support group leader and a member of the Government Relations Committee (GRC), along with being a telephone peer. “I do whatever is asked of me, if I can.”

For many years, Betty and her husband, Sam, have had a top-fundraising Walk MS team called “Betty’s Builders.” “I am proud when we present the chapter with the money we have raised from our fundraising efforts for the Walk. I know that the money will be helping people locally as well as helping in research to find a cure.” Betty is a Champion, sharing her story with participants in many of the chapter’s fundraising events. “It gives that person a better understanding. And they begin to identify with what someone might be going through or has gone through with MS. I am always ready to share and talk about my journey.”

Betty and Sam’s son has ridden in Bike MS for the last two years with his riding team at work. In 2008, he rode 100 miles for the first time, in Betty’s honor as well as in honor of a friend and her mother. “We are so thankful for so many people who do support the cause.”

Betty manages her symptoms by staying cool when the weather is hot, “resting when I’m fatigued, and simply staying aware of my body. My ongoing symptoms of MS are minimal right now. I have some numbness in my legs, some bladder issues but that is about it,” says Betty.

“I never know from day to day if this day will be the day that I will have a flare-up and if I do, will it cause me to get worse again? I pray that I can keep going strong. I pray that I am able to understand and be understood. I try to eat well and to keep a good attitude.” Today, Betty is a proud grandmother of six children and a firm believer that “life does go on!”

Written by volunteer Megan Overholser

Bill's Story

“I was a workaholic, west coast sales officer of a Fortune 500 company, traveling for work nearly 200 days a year away from home, my sons and my wife,” states San Juan Capistrano resident Bill Bisch. He thinks back, “I used to be a very active person: skier, golfer, runner, body boarder and sports player.”

That all changed for Bill at age 40 in 1995 when his legs stopped functioning properly. After many tests, including an MRI and spinal tap, came a diagnosis of multiple sclerosis. Married with two young boys Bill and his wife, Kristi, led an active lifestyle. The emotional toll of the diagnosis and its affects led Bill through a very private struggle. “After about a year of my private wrestling match with the implications of MS, my family, friends and I began to participate in chapter fundraising events,” says Bill.

Bill took an early retirement and became “Mister Mom” for his sons, while his wife, Kristi, chose to return to teaching. The busyness associated with all those years of being a workaholic drove Bill to join the chapter’s board of trustees of which he soon became the chair. Bill donated countless hours of his time, however his active and stressful role as board chair brought on MS symptoms like tremendous fatigue, difficulty walking and cognitive issues. Bill stepped back from his frenzied pace and realized he had lost sight of the blessings MS had given him: the opportunity to be with family and friends and enjoy his life. He resigned from the board and “re-retired,” this time with his health and comfort first.

Now Bill leads two chapter self-help groups and attends many chapter events. He enjoys chapter programs and values the education they provide about “treatments, therapies and activities for a healthier life.” Bill continues, “fundraising events are a great excuse to enjoy team spirit and raise money for much-needed MS research. My family has participated in Walk MS for over a decade.” For the past several years Bill has joined Kristi on family friend Chris Serocke’s team for the three-day, 50-mile Challenge Walk event. “Kristi uses her feet and me on my Segway!” The Segway has been not only a tool but a life for Bill, who now cannot walk 50 feet with out aid.

“I miss playing sports, strenuous physical exercise and traveling,” says Bill, “but I’m always looking for creative ways to accomplish those activities.” Bill has learned to pace his life, stating “…in hindsight MS has turned out to be a blessing.”

Carlyn's Story

At 20 years old, North Park resident Carlyn Shaw was a vibrant second-year student at Indiana University. She was studying journalism and had a typical, active college sophomore’s lifestyle including running, exercising at the gym and attending football games and other social events. While in the shower one day, Carlyn noticed that she couldn’t feel the water hitting her left arm but she could see it. It was a strange phenomenon, but Carlyn brushed it off as a pinched nerve. However, within 48 hours, the entire left side Carlyn’s body and the right side of her scalp felt “asleep” completely numb. Within days of her initial numbness, Carlyn could not see further than inches in front of her face. An immediate MRI ordered by her doctor showed tell-tale lesions and Carlyn was diagnosed with multiple sclerosis. “I knew nothing about MS. How could this happen to me? I was so scared.”

Within a few weeks, medications resolved Carlyn’s near blindness (optic neuritis) and her sight was restored. Carlyn immediately began treatment in an attempt to halt the progress of her MS and hold off another exacerbation. Carlyn administered her treatment by injection once a week; her college roommates called it “Shot Sunday” and stayed by Carlyn’s side as her flu-like side effects passed.

After her diagnosis, Caryln's father committed himself to learning all he could and worked to create awareness within their community. He participated in one of the very first Challenge Walks in North Carolina and has continued to participate every year for nearly a decade, raising over $50,000! Carlyn has previously completed the Dallas Bike MS Tour, fundraises annually for Walk MS, and in 2007 completed her first three-day, 50-mile Challenge Walk. Carlyn states, “These events remind me that there are many people out there passionate about finding a cure. How can I not be involved when everyone around me supports me?”

While MS affects Carlyn’s balance, and sometimes causes confusion and memory loss, Carlyn says that MS also gives her strength. “MS has motivated me to do all that I can in my life because I never know when my health may change,” says Carlyn. Over the past few years, Carlyn’s symptoms have included weakness in her left leg and arm, cognitive difficulties and occasional blurred vision, but it wasn’t until recently, more than a decade after her diagnosis, that an MRI displayed additional lesions.

At the chapter’s women’s retreat in 2008, Carlyn met six other women living with MS, all between the ages of 27 and 32, who established an email support group and meet monthly for dinner. “When I meet people with MS, we already have something in common. I look and feel pretty good, and it makes me feel good to share that with others.” Carlyn feels lucky for the support that her family, friends and community provide her on a daily basis, in addition to supporting her involvement with the National MS Society.

Darren's Story

Redlands resident Darren Martin was just 28 years old when his short-term memory started to fail. “My wife would ask me to go out and get some milk and I’d get to the store a quarter mile away and I would have to call her and ask what I was doing there,” recalls Darren. After Darren’s 1999 diagnosis with multiple sclerosis, he became glum. “I felt like I was all alone. I felt like nobody else could understand what I was dealing with,” recalls Darren.

In 2005, six years after his diagnosis, Darren began to change his outlook on life and on MS. “My focus was take a pro-active role in MS. It became a matter of how I was going to view this condition. I have accepted the things I cannot change and adapt to make them work for me.”

Darren recalls his first interaction with the chapter, “The first form of communication was by phone. I remember talking with a person that was upbeat and took a genuine interest in helping me.” Over the years, Darren has attended chapter support groups, mentioning, “I am the only one in my support group whose memory is affected.”

Darren began to exercise at the gym. He shortly learned that he was able to sit really well, however couldn’t stand for any length of time, “but I could ride a bike all day long. Cycling changed my outlook. I have this disease, but it's not going to hold me back.” Darren rode in the Bike MS Tour 2006 2008, and was nominated as the Most Inspirational Rider in 2007, an honor given to Bike MS cyclists living with MS who have overcome the disease in one way or another. Darren recalls others’ reactions of his commitment to cycle in the Bike MS Tour, “People used to tell me, ‘You can't do this or you can't do that; you can't ride a bike’ but I'm not going to let other people's opinions stop me. I am doing my part. I'm doing all I can to raise awareness about MS. Not only am I riding for the cure, but also for the things I can do.”

For many years, Darren rode his bike 10 miles everyday to the gym to work out for a couple of hours and then rode his bike 10 miles home. He says he did it so he could “go home feeling good.” However, since early 2009, Darren’s leg fatigue and lack of muscle control have made him unable to continue cycling. Darren enjoys being a Champion for other Bike MS cyclists and attends many of the events the chapter offers. “Though I do keep busy, I spend a majority of my time sitting (wheel chair, chair at the computer, etc.).”

“I enjoy meeting with newly diagnosed people and show them that life will not necessarily be a misery because of the diagnosis, but rather this will be a time that you simply learn to do things different. I no longer view things as something I ‘can’t’ do, but rather I view them as ‘doing something differently’ than I was used to doing it.”

Written by volunteer Megan Overholser

Dave's Story

Twenty-one-year-old college student, Dave Altman, woke one morning to find that his little fingers were numb. Though he was studying watchmaking, he didn’t “think much” of the numbness until the following morning when both of his hands were numb. “I thought to myself, ‘if this gets worse I'm going home.’” On the third morning, Dave’s whole body was numb. He was 400 miles from home, and felt alone and afraid. He immediately packed his bags and drove straight to the hospital in his hometown. Dave spent two weeks in the hospital, after six spinal taps he was diagnosed with multiple sclerosis.

Since his diagnosis, Dave has experienced optical neuritis in his left eye and a limp on his right side. Dave has discovered a treatment plan that works for him: a combination of diet, exercise, medication and spirituality. According to Dave, his walking has improved “50 to 65% in the last three years.”

“I do thank God everyday, for another day of creation, and then ask what big things are you going to help me create for others.” Dave says that having MS has changed his life drastically. “I have MS; MS doesn't have me!” In 2009, Dave will ride his first year in the Bike MS Bay to Bay Tour.

Dave has many varied interests and talents. He works as a personal trainer, using his experiences with MS to inspire and motivate his clients. “I think what I have become is a motivating life coach- personal trainer!” Dave enjoys scuba diving and has ship wreck certification. Dave also did a CD in 2001 called Dave Altman Project. His next goal is to build a workout facility disabled individuals, as well as to go back to school and earn his degree in human performance.

Written by volunteer Alyssa Brown

Dawn's Story

In 1995, Dawn relished her senior level leadership position at a local company. An avid runner, Dawn became concerned when she experienced trouble balancing while lacing up her shoes. She also found herself walking into walls at work. She was diagnosed with MS at the age of 34.

Over a period of about ten years, Dawn’s symptoms--including fatigue and temperature sensitivity, one-sided weakness, and difficulty with walking and talking--became pronounced. She told her managers about her diagnosis. At this point, things changed dramatically for Dawn at work (she wasn't sure if it was her disclosure or the extent of her issues; probably a bit of both she assumed); her staff members were assigned to other managers and her responsibilities were significantly reduced. Dawn feels that her MS has affected her career most of all. “I was on the CEO-in-training track and had to leave that behind. Not being able to ski and not finding lemonade to make out of that lemon also frustrate me.” Dawn decided to heed her doctors’ advice and leave on disability. This allowed her the time and resources to move to a cooler locale, trade in her bicycle for a tricycle, have a swimming pool installed to facilitate exercise while maintaining a cool body temperature, and learn new skills such as photography. Dawn focuses on the positive. “Assuming I had been healthy enough to stay in my job, I’d still be in the rat race and would not have had the chance I’ve had to take up photography in such a beautiful place.”

Dawn joined a self-help group through the MS Society. She also participated in the equipment loan program. “The self-help group surrounded me with people who ‘get it.’ It was refreshing not to have to explain what’s wrong. And the wheelchair loans left me with one less thing to worry about.”

Beginning in 1998, Dawn has captained 13 MS Walk teams. “It always awes me to see so many people participating in these fundraising events… I’m also speechless when it comes to the financial support I get from my MS Walk fundraising.” Her team’s fundraising numbers have increased annually, from $1,000 the first year to $17,000 last year. She urges supporters to keep on walking: “I am troubled that my Walk teams get smaller and smaller every year. I understand people’s frustration that there’s no cure yet (believe me, I do), but this disease still affects me and I’d sure like people to literally stand by me.” Dawn became a Board member in 2000, has assisted in obtaining items for the MS auction, and purchases a table at the auction each year. She is particularly interested in research. “Finding a cure and possibly repairing damage are most important to me!” Dawn’s feisty point of view is evident. “I haven’t seen a real change in my friends or family…more than likely because I don’t make MS a visible part of who I am (ok, so I walk and talk funny). I did have a potential suitor tell me that my MS deterred him from wanting to pursue me. Caught me by surprise, but figured it was his loss.”

Written by volunteer writer Elaine Chen

Frank's Story

When 32-year-old Frank Austin’s 20/20 vision deteriorated suddenly, doctors could not pinpoint a reason. “I went on with life, and my vision almost returned to normal. But, as time passed, I began to notice other issues. Like when I wrote, my pencil would jump slightly out of control,” remembers Frank. Frank and his wife, Corinne, golfed often, and over the years, walking the course became a struggle. When friends began to notice a limp in his gait, Frank, then 48, consulted a neurologist. “As the neurologist pointed out the lesions on my brain shown by the MRI, I was in shock. What I knew about multiple sclerosis was limited. I didn't know what to expect.”

Over the years, Frank has utilized the chapter’s self-help groups, equipment loan and other resources. “I attend all theresearch symposiums and have relied on the Society as my source for news and developments in MS research and clinical trials,” says Frank. Three years after his diagnosis, Frank experienced an episode of extreme fatigue and partial paralysis, leading his early retirement. “Now I get up every morning and make my wife's breakfast. I do the laundry. It is not managing a field service organization, but it is a purpose! I'm thankful to have the soul mate that I have.”

Frank is an active member of the chapter’s Government Relations Committee, an Angel Visitor and leader of a self-help group called “Man to Man.” Additionally, each October, Frank is an MS Champion for Bike MS team Mitsubishi Motors (read more about Frank and Team Mitsubishi Motors). He fundraises as a Virtual Rider and shares his thoughts and ideas to help connect team members with the mission, which helps to “bridge the gap between the fundraising effort and awareness of the consequences of an MS diagnosis.” Frank continues, “I bring a level of understanding to members of the team an understanding that people can thrive in spite of MS.”

Dependent on a cane, Frank occasionally uses a walker and frequently relies on a wheelchair when traveling or to delay fatigue. Frank no longer drives because his right leg is “just along for the ride” and he cannot move his foot from the accelerator to the brake. “I accept the lifestyle changes that come with MS. I accept the fact that tomorrow may be different, that I might not be able to perform as well physically as I did yesterday; that I might need a little help along the way.”

Frank and Corinne (aka Corky) live in Tustin and have been married for more than 25 years. They have three grown children (all moved out), a dog, three cats and a parrot. Frank concludes, “Corinne and all of the kids have been unconditionally supportive. What more can I ask for?”

Gabriel's Story

After serving four years in Japan, Gabriel was attending recruiter training school for the U.S. Navy. Two weeks after his 28th birthday, double vision, loss of strength, and decreased balance and coordination on the right side of his body led to a diagnosis of MS. Doctors also delivered the news that he would have to retire from the Navy. “The diagnosis left me feeling as if all the plans I had set and was working on had come to a screeching halt,” Gabriel recalls. “I was in the hospital for almost 2 weeks for there was no place for me to go. I would often cry in the mornings when I heard classes outside doing their morning physical training.

“At that time, all I could think about was what I may not be able to do. I knew, though, that thoughts such as these were not the way to go on with my life.” Back in San Diego, in response to new difficulties in walking, Gabriel decided to take on the 50 mile MS Challenge walk in a wheelchair. He recounts, “I figured out that by using my upper body I could finish the full 50 miles under my own power. It was extremely difficult work, but well worth successfully accomplishing my goal.”

Civilian life has its challenges and rewards for Gabriel. “The MS makes it harder since my energy level is so limited. Just the basic tasks wear me out…. It is getting tougher and tougher to handle and not remember back when being responsible for many tasks and getting them done came easy,” he admits. Gabriel has taken on the role of helping to raise his sisters’ children who live with his mother. “I have become one of their providers and their protector. My life is almost all about them.”

Gabriel has been coaching a T-ball team at Encanto Little League since 2002. “I like to say that baseball is what gets me through the heat of the summer. The joy and love in the eyes of the 4- to 6- year-olds I coach makes me forget any troubles.

“My life slogan is still ‘SI SE PUEDE’, Spanish for, ‘IT CAN BE DONE’. Today, it takes on more meaning in my life than it ever has in the past. It helps to keep me positive about working on accomplishing my life goals, continuing on strong everyday and looking forward to the day when we bring an end to MS.”

Gabriel continues volunteering for the MS Society and encouraging others to join the movement. “There is always hope - ‘esperanza.’ With events such as the MS Walk, the MS Challenge and the MS 150 Bike Tour, hope is always alive in my heart, and I know it can be done.”

Written by volunteer writer Elaine Chen

Helen's Story

At age 38, Helen Marocco’s diagnosis of multiple sclerosis came as a complete shock. It was April of 1983, and Helen had been experiencing bouts of numbness, tingling and optic neuritis. Although both her brother and sister had been diagnosed with MS, she was still unsure of how MS was going to affect her. After her diagnosis, Helen did not experience any symptoms for nearly 12 years. She kept her muscles toned by hill walking, playing tennis and taking part in aerobics classes.

Eventually, Helen’s condition forced her into early retirement and an electric wheelchair became her source of mobility. Helen’s husband, Norman, also took early retirement in order to stay home and help carry out the day-to-day tasks that she was no longer able to do herself.

Both Helen and her husband have devoted a lot of time and energy into many of the fundraisers and events put on by the chapter. Since the start of Walk MS back in 1989, Helen and her husband have participated on a regular basis by both raising money and taking part in the Walk. In the early years, Helen was able to walk the route; however, it soon became too difficult. Since then, Helen has been doing the Walk in her wheelchair. Helen has also participated in the Angel Visitation Program for four years and was honored by the chapter with a scholarship in her name. She and her husband have enjoyed the chapter’sAqua Exercise program for over a decade,. “We enjoy the exercises and being with other MSers: our other family. We look forward to swim days and find the exercise extremely beneficial for both of us.”

The effects of MS have had a significant impact on Helen’s life; however, she continues to stay positive and enjoy the things she loves. “Now that I am a quadriplegic and can no longer turn pages of a book, I enjoy books on tape. My husband and I also have season tickets to the Old Globe Theater and the La Jolla Playhouse, where we enjoy many live plays. Since I can no longer do the Walk, you can find me at the Wall of Hope gratefully thanking all who participate in the Walks or Bike MSride.”

“My advice to others with MS is to stay active...stay positive...look to what you can do and not what you cannot do... and think of others before yourself!”

Written by volunteer Leslie Christofferson

Jeanne's Story

Jeanne was listening to the radio in January 2003 when she first heard about Challenge Walk MS. She said that the message inspired her to “do something to help all of the people that had to hear, ‘you have MS’.” Jeanne didn’t fully realize then that just one month later, she would be diagnosed with MS, herself.

Just a few months after her diagnosis in February 2003, Jeanne, who had never walked over three miles in her life, was training for her first 50-mile Challenge Walk MS. Part of the challenges she would face that spring was not only learning more about her disease, but learning how to fundraise for the Challenge Walk. She explained, “I had never asked anyone for money, even if I had something to offer in return, like Girl Scout cookies. My dad would buy my share and give them away as gifts!” Jeanne persevered, though, and over the last ten years raised over $60,000!

The challenges of Jeanne’s disease threatened to get in the way of her determination. She notes, “During my first three Challenge Walks I was able to walk the entire 50 miles. The next spring when I started my training for my fourth Walk, I wasn’t able to handle anything over three or four miles. I decided to keep on registering as a Walker because I think it’s more fun.”

The National MS Society, and in many cases specifically the Pacific South Coast Chapter, has always played a part in Jeanne’s on-going education about the disease. Jeanne explained that through the MS Learn Online web casts, the publications such as Momentum and the local informational seminars and symposiums, she has gained knowledge that she’s eager to share with others. She says: “I chat with people all the time who have been touched by MS. During Challenge Walks, I thank new Walkers and Sole Survivors for participating. I talk with Walk MS participants and share information about the Challenge as well as the MS Bike Tour.”

It’s no wonder, then, that Jeanne is also an MS Ambassador. But she shrugs off her many hours of helping others, and says, “All the remarkable people that I’ve met through my involvement with the MS Society have been a gift to me.”

Karen's Story

Karen Cooper first noticed symptoms of one-sided weakness in 1983, at the age of 41. The diagnosis of MS was made about a year later. Her MS presented itself only on the left side. At first, it didn't affect Karen’s career as a Postal Clerk. She continued working for the U.S. Postal Service for ten more years. “I fought hard to keep my job,” Karen recalls, “but the stress began to impact the disease and I had no choice but to retire in 1994.”

“It was hard on my family because of the uncertainty of this disease. Also, my ability to always be there changed as the disease progressed,” Karen shares. “There are daily frustrations but there are also daily rewards. Key to dealing with this very unique and very individualized disease is keeping a positive attitude—thinking about what you can do, not dwelling on what you can’t do. I get very excited when I figure out how to do something with one hand that typically takes two hands.”

Karen has found ways to maintain her mobility as the disease progressed. Over several years, Karen went from walking with a slight limp to walking with a cane to walking with a four-pronged cane. Through the MS Society’s equipment loan program she obtained a manual wheelchair to use for long distances. More recently, Karen uses a power chair, which allows more freedom and control over her mobility. The MS Society provided a loaner van when Karen’s van was being serviced or repaired.

Karen developed a passion for educating the public about issues affecting people living with disabilities. She successfully advocated for additional handicap parking spaces where more were needed.

The MS Society provided many informational seminars that Karen found beneficial, and Karen has participated in the Society’s water exercise program for over 15 years. She reports, “These programs have lessened the negative impact MS could have on my daily life. The physical and emotional well-being provided by the water exercise program is invaluable.” Participating in the Fitness Clinic for individuals with disabilities at San Diego State University has also helped Karen improve her strength, stamina and balance.

In 1997, Karen helped establish Team Water Walkers for the MS Walk. They put on their own aquatic event, and have continued to maintain their Team for 13 years. As a Champion, Karen has also volunteered at the Carlsbad and San Diego MS Walks and at the MS Bike Ride. “These fundraising events are very important— not only for the money raised to support vital programs, but also to promote awareness and educate the public about MS.”

Written by volunteer writer Elaine Chen

Keith's Story

Keith Baker will tell you that his MS diagnosis was a blessing. He says, “It sounds crazy, but my diagnosis was one of the best things that ever happened to me.” Keith remembers making a presentation to a client three years ago, and “Suddenly, I couldn’t read the words on the screen. I had my co-worker take over the presentation and within an hour I was at the office of my primary physician.”

He reveals that after his diagnosis his life changed for the better, but states that the going was sometimes rough. He says, “That first year, I went with my wife, Janet, to a newly-diagnosed seminar sponsored by the chapter in Scripps Ranch. But I still pushed my family away.”

Also, Keith freely admits that three years ago he “was overweight and inactive,” and his search for a new fitness eventually led him to train for last year’s Challenge Walk his first and that’s when he was introduced to what he calls “a monster.” That “monster” was “a commitment to fitness and running,” he said. Keith had gained a new friend, and lost 60 pounds.

At the end of the Challenge Walk, Keith remembers, “I was approached by someone from MS Rock Stars, and one week later I started training for my first marathon.”

Keith’s combined fundraising efforts between Challenge Walk and Rockstars resulted in donations totaling over $5,000! He started by asking for donations from friends and coworkers. “A few friends worked at companies that would match donation amounts, which really helped,” he says. And his niece, Judi, helped him with making pies, cookies and cakes for bake sales. Keith laughs as he says, “We made 27 peach and apple pies, and took orders from neighbors, friends and co-workers. With Judi’s help, I became quite the baker. We were baking fools! That’s why our MS Walk team name is Team Shake and Bake(r)!”

Keith is committed to doing more chapter-sponsored events. He says, “Our chapter does so much for us, with all the events scheduled throughout the year. I’ll be doing Legoland Walk MS as part of theCrazy8’s team, and am looking forward to other events like the MS golf invitational, paddle out, and more.”

Keith reflects that three years has made such a difference in his life. In many ways, he is a new man. He admits, “I thought I could deal with MS myself. It took some time, and counseling, but I finally accepted that I can’t face this disease alone.”

Kevin's Story

At 20 years old, Seal Beach resident Kevin Gaffney began experiencing seizures. “I was still in college with my whole life ahead of me,” he remembers. “My diagnosis of multiple sclerosis brought shock and anger! I had a career planned and thought that may have been lost. I didn’t know how my friends and family would deal with my diagnosis, or even how I would.”

After years of denial, Kevin “decided to take things into my own hands.” Kevin participated in his first Walk MS event by himself and was “overcome with emotion on how many people were there for the event. I recall feeling a tear well up in my eye. It came out of somewhere and perhaps years of never/little talking about or really addressing my MS caught up with me.”

Though Kevin hasn’t often utilized the many programs and services provided by the chapter, he says “knowing they are there makes me feel very supported for any time in the future when I may need them. I know the staff is very supportive and have helped my friend Astra with her MS. And when I meet new people who don't know where to go, I steer them towards the MS Society.” Kevin also offers to talk to friends who have been affected by MS, whether through a family member or otherwise.

Kevin cites stress as the biggest factor in his MS attacks which have included five seizures and a weeklong bought with blurred vision in one eye. Before 2000, he “kept trying to minimize my stress, but with very limited success. I was unhappy with my job anyway, so I quit. I didn't really have a plan, except to regain balance in my life. I took a vacation and came back with a plan for my MS.” Kevin spoke with his doctor and, in the fall of 2000, he began treatment and went back in school to become a teacher. “Teaching has its own stress, but it is more manageable and enjoyable for me,” says Kevin. “Saying Goodbye to aerospace and Hello to elementary school teaching was one of the best things I’ve ever done in my life! I’ve become a better person and even got married.”

Along with the career change, Kevin attributes his health to cycling. “I feel that the more I’ve gotten involved with biking, the more it has helped my MS.” “Casual mountain biking” led him to “needing to ride every week.” He says, “I get kicked out of the house when I don't ride due to crankiness.” Kevin borrowed (then bought) his first road bike for the Bike MS Tourin 2003 and has not missed an event since. In 2008, he was nominated as the Most Inspirational Rider, an honor given to Bike MS cyclists living with MS who have overcome the disease in one way or another.

“Having MS makes me more aware of my limitations. I can say 'no' when I want or need to as my body tells me, yet I still push myself so I don't let MS control me. I feel that teaching shows me what was, is and what will be… all in the same day. I have MS, but MS does not have me.”

In March 2009, Kevin completed a 44-mile, 8,000 feet climb, one-day mountain bike event called the Counting Coup. “My goal was to meet all the cutoff times and finish… that's it. As I crossed the finish line I held up a sign that said ‘MS didn't stop me from today's challenge and it should not stop you!’ To my surprise, the organizers of the event knew about my battle with MS and awarded me the Counting Coup Inspiration Award. I had my Team Crash jersey and told those who asked about it what the jersey meant. I'd point to the Society logo on the jersey, mention why I ride and explain that often we crash in life... what we do when we get up is what matters. I'm up, I'm ready...let's ride!”

Kevin’s Bike MS team, Team Crash, is named after Kevin because “I was always crashing when I first started mountain biking. Now, I crash less often, but raise more money for MS!”

Kevin’s ongoing symptoms tend to be mild for the most part, with his last seizure occurring in 2000. Other symptoms are fatigue at times, rare cognitive issues, and according to Kevin, “I talk way too fast.” Kevin says his most frustrating symptom is that he tends to slur words at times. “My wife often has to ask me to repeat myself.” In addition to Kevin, Kevin’s mother has also been diagnosed with MS.

“Even with MS, I’m a normal person who leads a normal life. I feel fortunate that I’m able to move around and live life with limited disruption. I know this may not be the case my entire life and is not for many others living with MS. As long as I can ride my bike I will ride in the MS ride.”

Lee's Story

In her 20’s, Oceanside resident Lee Bulfin began experiencing strange symptoms. It was the mid-1970's, and Lee was given a variety of possible reasons to explain the numbness in her hands and feet, the clumsiness and balance problems. None of the reasons was accurate and they all made her feel that in some measure she was responsible: improper diet, not enough exercise, not a positive-enough attitude, etc. Over the next 10 years Lee saw many neurologists and orthopedists, until one doctor finally recognized the symptoms and suggested a selection of previously unavailable tests that would finally diagnose Lee with multiple sclerosis in 1991.

Lee began a journey of understanding MS, educating herself through the Society’s website which was new at that time. She brought her two teenage daughters with her to Society lectures and programs to help learn and "gain acceptance of what might be in our future. We have all made changes in our lives, but we have not missed out on any of life's pleasures - graduations, travel, weddings, family reunions and more.”

Lee's ongoing symptoms include fatigue and difficulty walking; she often uses a scooter to get around outside her home. Lee speaks about the chapter as a way to get out and discover what is available to help people with MS. After retiring, Lee began volunteering her time, twice a week, to the chapter. She helps the office staff prepare for upcoming fundraising events andprograms. She participates in chapter-sponsored aqua exerciseprograms. Lee is also team captain of Walk MS team Pacific South Coasters, which she began in 2008 with 43 members. The team includes a mix of chapter staff members, people living with MS and their families. "There are thousands of us in the area who are living with MS, and we are in the best position to motivate others to support the National MS Society: the vital programs and services they offer locally and the important research they fund nationally and internationally."

Leslie's Story

In 1999, during a routine physical, 35-year-old Leslie mentioned to her physician that at times her right foot would drag when she walked. Over the next few weeks, Leslie saw many doctors and underwent many tests, including two MRI’s and a spinal tap. Then the diagnosis… multiple sclerosis. Fear and panic accompanied shock as Leslie began to cope with this unexpected new challenge.

Between the literature and the internet Leslie was overwhelmed by the information and the possibilities. “I could wake up blind tomorrow and it could last for an hour or forever! Or not be able to walk! Or work! Or clean house! Well, maybethat would be okay.” Leslie soon realized that those possibilities exist for everyone and became aware that, despite the challenges, she has quite a few blessings to be grateful for as well. “We each just need to do the best we can with what we have.”

For several years, Leslie’s MS symptoms fell in the “mildly annoying” category. “Occasionally, I experience unsettling episodes where I either feel as though I am encased in a lead wetsuit with magnets pulling me to the floor or that I’m trying to walk in a kids’ jumping house (with varying numbers of kids jumping!)”

In 2008, Leslie’s symptom of ‘fatigue’ gained new meaning. Leslie describes it as “a water bottle, half full with a slow leak. If I’m not careful, all my energy drains out, sometimes quite suddenly, and I MUST lie down. I can’t hold myself upright.” Leslie has learned to manage this new challenge with medication and frequent breaks. On weekends when she’s up to it, Leslie does a Pilates DVD at home, however she strives for balance, “I have a sort of ‘hangover’ for several days if I over-do it.” Leslie values the literature about MS produced by the Society and has joined chapter-hosted online seminars and conference calls. She continues, “It’s reassuring to know the programs exist if and when I need them.”

Leslie is learning to lean on her friends, family and neighbors, “If I need something like my grocery shopping done for me, I ask. This actually takes quite a bit of effort on my part as I am perhaps overly fond of my independence. But I’m learning.”

Leslie sees her diagnosis as an opportunity to focus her energy on a cause. She fundraises as a Super Crew member (workingrather than walking) for the three-day, 50-mile Challenge Walk each year, and also fundraises for Walk MS annually (since 2000!). Involvement with the chapter makes Leslie feel “Purposeful. Like an active participant in trying to do something about MS. And the camaraderie is awesome. It’s nice to be around others who can relate.”

Leslie remains excited about life and rises to the challenges her MS presents on a daily basis. She readily refers to her blessings and gratitude and remains grounded in the positives all around her. “I’ve been blessed to be able to make some adaptations enabling me to remain working full-time (though now from home), and raise funds for the Society.”

Written by volunteer Alyssa Brown

Madeline's Story

While vacationing in Hawaii, Madeline Oberting occasionally noticed herself bumping into walls and being unable to see short distances down hallways. When she returned to California, Madeline visited a neurologist who tested for a brain tumor or stroke. On May 11, 1981, eleven days short of her 36th birthday, she was diagnosed with multiple sclerosis.

Madeline was left with mixed emotions. “I was relieved that we put a name to it, but scared what the future would bring. My daughter was 11 years old, energetic and active, and here I was slowing down. I worried about my husband too. MS can affect the whole family.”

Madeline began attending chapter-sponsored support group meetings in Chula Vista. In addition to the support groups, Madeline enjoys being an active part of the annual Bike MS Tour. “I like going up to Carlsbad to support the riders and thank them for their fundraising efforts. Being a greeter and Champion at the Bike Tour and Walk MS is a great time.”

Madeline’s favorite event is the MS Dinner Auction. “It’s always fun to attend. We get dressed up for a special evening out and spend some money on the silent auction. I like dressing up and always have an enjoyable evening out with my husband. I am thankful for people working so hard raising money for MS and having a fun time doing it.”

Over the years, Madeline has experienced constant change in her symptoms. “Accepting my limitations was a big deal for me,” recalls Madeline. “I had to accept the help from my husband and daughter, and giving up control was hard for me.” Madeline is no longer able to walk or drive. “I have spasticity of the legs which causes me to almost bounce out of my wheelchair but is controlled with medicine. My speech is slurred and my cognitive memory has been affected, as has my bladder control. I tire very easily and use a wheelchair for mobility,” says Madeline.

Madeline’s husband, Bob, is her caregiver. Twice a week they go to Loma Verde Pool in Chula Vista for Madeline’s MS swim classes. For the past few years, Bob has been relieved from caring for Madeline for 20 hours each month through the chapter’s respite care program. “My husband, the caregiver, is expected to be upbeat all the time, even though I have good and bad days.”

Despite the struggles of living with MS, Madeline finds joy in getting out in her wheelchair “especially to the Imperial Beach pier,” traveling, going to Laughlin and visiting her daughter and grandson in Bullhead City. “This disease has taught to live in the present and not to worry about the past or the future. I am trying to smell the roses each day, but this is a hard lesson. Now that my husband Bob is retired, we travel a lot. We have been married over 40 years. I am still dealing with MS everyday; I guess I see myself as a survivor after all these years.”

Written by volunteer Leslie Christofferson

Mary's Story

Mary Virginia Hill was diagnosed with multiple sclerosis in 1985. At the age of 37, Mary was a fulltime teacher and program coordinator before MS forced her to go on disability through CA State Teachers Retirement. Fearful of her future, Mary called upon her family, friends and co-workers for support.

“Once I learned to accept it and not fight it, I realized I could slow down, enjoy life more, volunteer and become active in the community.” Most importantly, Mary continues to participate in fundraisers and swim in the ocean, which is one of her passions.

Among the many programs and services offered, Mary utilizes the National MS Society for financial support, equipment loans and participates in MS Yoga classes on a weekly basis, where she has developed many friendships that have extended into her life outside of class. Mary has participated in Walk MS for 10 years, captaining her team Hill’s Angels, and is a member of Elite Feet (the top fundraiser club for Walk MS). This year, she has decided to participate in Bike MS as a Virtual Rider. Her Hill's Angels team will ride instead of walk! Mary volunteers as a lunch stop captain for Bike MS and Challenge Walk MS, and solicits donations for the MS Dinner Auction. As if that weren't enough, she is also part of the MS Ambassadors Speakers Bureau. It was at the “Turning the Tides on MS” open water relay swim event in 2001 where Mary met her life partner Richard and they have been together ever since.

“The fundraising events make me feel happy and fulfilled to be able to help ‘give back’ and ‘pay it forward.’ It shows others with MS that life is good and to continue using your strengths to help others, which in turn, helps yourself.”

Living with MS is never easy, but Mary continues to manage her symptoms through swimming, yoga, meditation, diet, and most importantly, positive thinking. Mary enjoys spending time with Richard and their extended families, as well as her Canine Companions for Independence Service Dog Indy She continues to contribute her time volunteering, acting as an advocate for disability awareness and helping others on a regular basis. The biggest change for Mary is not only learning to deal with the uncertainty and loss of control but accepting the challenge and learning new ways to accomplish things. “Life with MS is better that it was before because I am honest with myself and others. I am realistic about my limitations and I continue to find other ways to deal with them.”

Written by volunteer Leslie Christofferson

Meredith's Story

Meredith Monroe began her participation in Challenge Walk after losing her mother to multiple sclerosis in September 2008. She explains: “Sometime in 2003 mom had experienced numbness in her arms, but because she had polio as a child and suffered with multiple post- polio symptoms, she wrote it off to that.” Meredith and other family members convinced her to get it checked out, and she was referred to a neurologist. Her diagnosis of MS happened soon after.

Meredith says her family understood that a diagnosis of multiple sclerosis could sometimes be a relief, but for them it was scary. She reveals that her family didn’t know much about MS at the time. And they had the additional burden of trying to cope with the emotional toil that the disease can wreak on everyone involved. Her mother’s depression radiated throughout the family. Meredith says, “Not only was I sad that my mom had this disease, but I was also angry, and thought, “Why did this have to happen to my mom?”

Three years after her mom’s diagnosis, Meredith started participating in Walk MS, and started Challenge Walks after her mom died. She explains, “My participation in MS Walk and Challenge Walk was a way I could feel I had some control of the disease that took my mom’s life.” Last year her team of three people the Fabulous Angels from the East Coast raised over 17,000 dollars, and was one of last year’s top fundraising teams!

Meredith’s fundraising strategy, and that of her team members, is to “host many fundraising events and annoy everyone we know to help support us!” She laughs, saying, “There are so many generous souls out there, and we accept their donations with love.” Of course, Meredith’s team will do the Challenge Walk this year, too. Meredith concludes by saying, “It’s great to get involved, because helping others is one of the most fulfilling and rewarding things you can do in your life. You meet people who have similar experiences. You start just doing the Walks, then you learn more about Challenge Walk and it becomes part of you.”

Michelle's Story

Michelle Johnson knows about “walking the walk” Challenge Walk MS for her Aunt Sandy, a Michigan resident diagnosed with MS over 20 years ago, who is far from the Challenge Walk actions of her San Diego niece. “I never want to see the day when my Aunt Sandy can’t walk for herself,” Michelle says of her participation in the MS Challenge Walk.

It was back in 2007 and Michelle and her mom had completed their first Walk MS event. Michelle recalls receiving a flyer in the mail asking if she was up for MS Challenge Walk of 50 miles. “I thought it would be a great opportunity to not only challenge myself physically, but to show my support for my aunt and all others with MS,” she adds.

This year will mark Michelle’s sixth Challenge Walk. After having her own team for a couple of years, she’s now a proud member of the Nor Cal Street Walkers, one of the largest teams that participate in the walk every year with several team members living with MS. It’s also her second year of service as a committee member in helping to plan the Challenge Walk.

Michelle’s family and friends contribute generously to her fundraising efforts and her colleagues at Pfizer (a sponsor of the Challenge Walk every year) are always supportive. “One year I solicited donations of items that I could sell at a rummage sale where all proceeds went to the MS Society and they provided so much stuff I raised over $1800 in one weekend,” she recalls. Pfizer also matches employee donations 100%, which greatly assists with her fundraising efforts every year.

Michelle reflects that “Participating in Challenge Walk MS makes me feel like I am a part of something bigger than myself. Every year I walk side by side with a teammate who has MS, and just when I might get the idea to slow down she motivates me to keep going! I have no excuse to not give my 100% when I know that the physical struggles of my partner far exceed my own.” But she also acknowledges that the physical strain of the walk is minor compared to the fun, friendships, stories, and bonding along the route.

Michelle admits that what started out as simply a challenging walk and support for her aunt has transformed into a mission of her heart. She becomes emotional as she explains, “I am here to be an advocate for my Aunt Sandy, and use my voice and my feet to walk the 50 miles in support of a cure for MS.”

Nan's Story

Nan Luke began practicing law in 1984. She was in her 20’s and just "coming into her own" as a litigator when, from the bottom of her foot to the middle of her face, her left side went completely numb. She was often tired and became more clumsy than usual, constantly tripping when walking. “The diagnosis of multiple sclerosis came quickly after my first visit to a neurologist; he ordered an MRI and spinal tap,” recalls Nan.

“'Denial isn’t just a river’ they say, and I ignored the disease… I never told anyone I had MS,” admits Nan. By age 30, Nan was a hard-charging civil litigator with a respected southern California firm known for aggressive defense and trial work on profession medical malpractice, business and aviation matters.

It was not until 1997 that injury and symptoms forced Nan to rethink her career-driven mentality and begin treatment for her MS. “I discovered my local chapter of the National MS Society when I became open about having MS. Others, even other lawyers with MS, came to me for advice. I attended a newly diagnosed group and was impressed with the caliber of the program, the facilitators and my fellow attendees living with MS.”

Nan soon joined the chapter’s Board of Trustees. She is passionate about advocacy and agreed to chair the local Government Relations Committee (GRC). Nan shares, “The key to advocacy is calmness and credibility. It is about building relationships with those who make policies which impact those who have or are impacted with MS. The Society has built a solid, positive reputation in national, state and local arenas through the dedicated and consistent teamwork of Society-connected professionals, staff members and the host of volunteers and patient advocates.”

Nan attends many of the chapter's fundraising events as a Champion, sharing her story with participants to expand their understanding of MS. “When I participate in an event hosted by the Society, two things stand out to me. First, it is a joyous first class, polished, professional event. Second, I experience and know on a deep, deep level, that I am not a victim or passive person with a disease. No, I am part of the solution. Thank you for joining me. Thank you for joining us.”

“Thanks to research and a great medical team, I continue treatment today and it is helping to slow the progress of this disease,” says Nan. “But I do not have the energy I once had and the feeling in my left side never really returned.” Over the years, Nan has experienced optic neuritis a few times and has had “other invisible symptoms.” Her “vices” are now “walking my dog and reading books.”

Today, Nan lives in beautiful Laguna Beach and continues to practice law. Because of the many challenges faced when with living with MS, Nan has incorporated handling disability matters into her own practice.

Written by volunteer Leslie Christofferson

Rabiah's Story

Rabiah Coon was a 21-year-old college junior attending UCSD when symptoms of numbness and tingling sent her to the Student Health Center. “I left a final exam early one day when I couldn't write,” she recounts. “I passed the class, but only because I went into the final with an A. I wasn't striving for a C+. I didn't know what was wrong until a few months later, so I couldn't even tell the professor. I was too embarrassed when I finally knew.” After five months of screenings, Rabiah was diagnosed with MS.

“I was very, very scared,” Rabiah recalls. “I had only seen MS in [celebrities who were] disabled by the disease and I thought that was the case with anyone who has MS. I was haunted by that for a while. I know now that it is a much more diverse disease and much more uncertain, for better or for worse.” As Rabiah began adapting to her diagnosis, she also considered the responses of the people around her. “I think immediately there was some guilt in my family and no one knew how to react. I felt support but also didn't want to share my fears. I hid the MS and told very few people at work. I didn't want people to know and if they did, very few knew that it worried me as it did.”

Rabiah faced her fears and joined the MS Society. “I know the importance of the MS Society's work. I walk every year. My team, Team ProFlowers is something I am very, very proud of. Walk MS [was] the first thing I did to get involved and the first time I felt like I wasn't alone. My first team was comprised of four people: my sister, my brother's girlfriend and my roommate. I saw all of the people walking and knew I would be ok. I still struggle and get discouraged, but I then go back to a place of hope. I feel I have accomplished so much personally by participating and having a team and have been able to raise the most awareness that way. It is remarkable to be a part of something so much bigger than myself.”

Participating in another program, MS Society’s Women's Wellness Weekend, also inspired Rabiah. “It changed my life because I met people just like me and my support group came out of it. Having people in my life who truly know how I feel is invaluable.” Rabiah enjoys volunteering at events such as the Del Mar Fair and Bike MS. “I feel that there is good support for people with MS once they find the MS Society. I think it takes a while for some people to utilize services but once they do, they are in good hands. It makes me feel supported and stronger.”

Rabiah no longer feels that having MS is something to cover up. “I revealed that I had the disease at a company meeting after hiding it for a few years. The company had an MS Walk team but many people never knew why I was its captain and why I cared so much. I do not feel like I need to hide it anymore.” Numbness and fatigue are ongoing symptoms she faces, but Rabiah adds, “I make sure I get my treatment every month. I am not very disciplined otherwise, but it is a personal goal to increase my fitness and endurance. I think MS has given me a cause to really fight for.”

“As I have opened up about MS, I have found that people do care and have found that there are people I can turn to or ask for help when I need it. I am touched by how many people make MS their priority. There are many causes that touch us as humans on a global level and personally. The cause is very personal to me. When I see other people making themselves part of the cause because of me or people like me (their friends, their families), I am humbled.”

Written by volunteer writer Elaine Chen

Rob's Story

At 37 years old, after experiencing numbness and tingling in his legs and thighs, Anaheim resident Rob Lammers was diagnosed with multiple sclerosis. “I knew that my uncle and aunt on my mother's side were also affected by this disease,” recalls Rob. It was 1988, and Rob only had to slightly alter his lifestyle real estate career to accommodate his clients and himself.

“I endeavored to learn everything about MS to better understand, and share it with my coworkers and family,” says Rob of attending Society newly-diagnosed educational seminars and self-help groups. Rob is now co-leader of the chapter’s Brea self-help group, and makes every effort to get information to group members, schedule guest speakers and more.

Rob also became a part of the chapter’s Government Relations Committee (GRC) and MS California Action Network (MSCAN) to work with elected officials to strive for more access and communication regarding the MS community’s health and welfare. Rob sites transportation and housing as his main focus. “I feel that I am helping to make a difference by being involved with these committees, and this makes me feel needed,” says Rob.

“I believe that knowledge is power and the more we know the better prepared we are. That is why Walk MS and other fundraising events are so important to find the cure for MS,” says Rob, who has participated or volunteered at chapter fundraising events such as the Bike MS Tour every year since 1997. “I work in whatever capacity the chapter needs me to, at least four times a year,” says Rob. “I help with registration, and cheerleading, but no uniform, darn it!” he jokes. “Fundraisers are very important to me because I see other people with MS and the friends that I have made over the years that walk or bike to support the cause!” Rob also acts as a Champion, aiming to “get to every fundraiser close to me” and the cause.

“Since my diagnosis, I had to learn to slow down, and it was not easy for me to do so,” says Rob. His symptoms of fatigue and issues with bladder control and gait led him to “learn quickly where the bathrooms were and the handicap accessible entrances!”

“My family understood when I had to stop working and helped with the transitions that have occurred. They’re very supportive, especially my brothers Rick and Bill, and my sister Mary,” says Rob. “MS has taken my ability to drive, but I adapted to the bus system,” says Rob. “Bus and rail service has given me the ability to visit my family and friends and stay connected.”

Rob’s ongoing symptoms include heat intolerance, gait disability, pain when muscles stiffen up, some memory problems and slightly elevated anxiety when time is an issue (bus pickup time and getting ready, or ACCESS delays). “I manage my symptoms by exercising twice a week, at Goodwill Fitness Center and Healthy Balance. It's great!” exclaims Rob, who enjoys gardening (potted plants), wine collecting/tasting, and attending free lectures on Ancient Egypt and museums.

Written by volunteer Megan Overholser

Sally's Story

At age 40, Sally Brown made her health a priority. She was an "at-home" mom with five active children ranging in age from 3 to 13, and “most of the neighborhood in my backyard.” The year was 1992. “I ran six miles a day (great stress reliever for busy moms) and put at least 100 miles weekly on my bicycle,” remembers Sally. However, after experiencing vision problems,numbness and random weakness in her legs, Sally was diagnosed with multiple sclerosis. Sally wondered, “Would I become ‘disabled’?"

Sally rushed into the workforce and became an advocate of state rehabilitation. For four years she worked in doctor’s offices, with x-ray technology, and was a medical assistant. Sally also stayed physically active and rode in the Bike MS Tourfor six years, beginning in 1993. In 1994, at the peak of her cycling days, she rode in a Society fundraiser in the south of France that covered 250 miles in six days.

Sally recalls her denial about MS, “At that time, I didn’t go toWalk MS because I didn’t want to see people in wheelchairs.” However, after giving up cycling and with her MS symptoms worsening, Sally began utilizing such chapter services assummer energy assistance, and attending programs like theday at the bay, holiday brunch, Annual Meeting of Members andresearch symposiums.

Due to worsening symptoms, Sally soon stopped working. She was often using a scooter, and in 2000 began relying on her first power wheelchair. In 2002, Sally got a Baclofen pump to help ease her spasticity. “I’m very fortunate that my doctor listens to me and works with me,” says Sally, who has become an advocate for the pump. Though Sally was receiving disability income, it wasn’t covering her needs. In 2006, Sally applied for a job at Sam’s Club and became a greeter. Sally enjoys working three days a week. “It’s a neighborhood store in a small town where I’ve lived for almost 30 years. I often run into people that I forgot I knew like people whose kids went to kindergarten with mine.” In 2009, Sally was honored with an award from the city of Fountain Valley a Disability-Friendly Business Award created to recognize a Fountain Valley business and/or individual for outstanding service in the business community that assists disabled persons.

“I get to do a lot of outreach as a Sam’s Club greeter, and in the world of the disabled,” comments Sally who indicates that she has a lot of community support. “Everybody recognizes me, and people stop to pat me on the back for continuing to work.” Working also allows Sally to afford things she needs, like car maintenance and her “special mattress that prevents pressure sores.” Sally says that “even if it got to the point that I didn’t really need the money, I would continue working. It’s great being independent, even though people wonder why I do what I do.”

Sally lives at home with two of her children and one grandchild. Though she is reliant on her wheelchair full-time, she is able to take care of most of her own needs. “I am very independent,” Sally states, “and I keep up on the internet with everything the Society puts out.” She does water aerobics twice a week, and between exercise and work she often “runs out of energy.”

Sally is a Champion for many chapter events. She shares her story to help fundraisers better understand and relate to MS, and shares her insights: “It’s all about the positive outlook. Each day is a challenge and we never know what it may be.” She fundraises for Walk MS and Bike MS, working with her employer to leverage donations. Through the VAP(Volunteerism Always Pays) program, Sally donates her time to the Society and Sam’s Club makes a donation up to $500 each year!

“I have great support from my children, family and some close friends in the area who are living with MS, as well as many of my clients at Sam’s,” says Sally. “There isn’t anything we can’t do. We have to try it first. And if we can’t do it, there is always someone who’s willing.”

Shirley's Story

In 1992, Tustin resident Shirley Cero was diagnosed with MS. After experiencing weakness in her right leg, loss of balance and the drag of her right foot, it was a business trip to New Orleans where Shirley proceeded to experience a major exacerbation. After Shirley returned to Tustin, a doctor suggested a few diagnoses: a stroke, a tumor, or MS. After further tests, Shirley was diagnosed with MS.

Shirley has been able to call on the local MS society for their support. In particular, Shirley is involved with a support group and volunteers at the chapter. “After going out on disability I found myself having the time and the energy to re-acquaint myself with the MS Society and once again get involved. I have found many of the courses offered to be very helpful both emotionally and physically. Since I require a caregiver and have a mortgage I'm very appreciative of the scholarship money used for those of us who need it from time to time. This is just one of the many things our local chapters do for us.”

“I moved right along with progression of the illness, using a cane in 1997, a walker in 1999 and am currently in a power chair. In March of 2001, I had a Baclofen Pump inserted surgically to reduce the severe spasticity I suffered throughout my entire body. I was very fortunate that AACN put an office in my home which let me work full time until the end of 2001.”

Written by volunteer Leslie Christofferson

Stephen & Scott's Story

In 2001, Scott Horn began experiencing numbness and double vision on his left side. After a series of medical tests, he was diagnosed with multiple sclerosis. His son, Stephen, was only 12 when he learned that his dad is one of an estimated 400,000 Americans living with MS, but that didn’t stop him from talking his dad into walking 50 miles with him to raise money for MS research and programs. “When he was diagnosed, he wasn’t himself. He was kind of of down and didn’t want to talk about his disease. I wanted to help him be more confident,” says Stephen, now 17.

“I originally tried to talk Stephen out of participating in the walk, but I couldn’t refuse when Stephen responded by saying he wanted to do it to help find a cure for MS,” says Scott. Although Scott and his family had attended the annual one-day Walk at LEGOLAND® California in Carlsbad several times, Scott had trouble facing the fact that he has MS. “I wanted nothing to do with MS,” confesses Scott, 51. However, the people that Scott met during the Challenge showed them that people with the disease still lead active lives. One man he spoke with had been in a wheelchair for six months, but less than a year later he was walking the 50 miles. Scott recalls his denial and fear of MS and believes, “what got me out of it was doing the three-day Challenge Walk. I gained a better awareness of what MS is. The people who participate are amazing.

You walk with one person for a few miles and then you walk with another group later. Everyone is so friendly.”

Though Scott continues to experience symptoms like fatigue, numbness and “hot feet,” having MS hasn’t slowed him down. He plays golf, jogs and continues to work full-time. Scott says he will continue to do the Challenge for as long as he can because he’s determined to raise awareness and money for research. “I have a disease that can debilitate motor skills, and I’m able to go 50 miles. I’m not sure how long I will be able to do it, but I’m going to do it as long as I can.”

In 2007, Scott and Steven’s Challenge Walk journey was chronicled in an inspirational video that is available for viewing at videos.mspacific.org. Learn more about Scott and Stephen’s father-son team or register for the Challenge at www.myMSchallenge.com.

Tim's Story

Carlsbad resident, Tim Salmon, was 32 years old when, one morning after a run the night before, he felt minor tingling in his right foot. The tingling quickly spread to his other leg then to both of his arms. “Being the stubborn individual that I am, I went surfing. When paddling on my board, I felt a strong squeeze on my stomach,” recalls Tim, who considers himself fortunate to meet a doctor who quickly pinpointed the possibility of MS. After an MRI exam and spinal tap, it was confirmed in May 2003 that Tim had multiple sclerosis. “I took the news to heart and honestly cried, which I never let myself do, before realizing this is just another obstacle to take in life and I must stay strong and fight.”

Tim utilized the chapter for assistance informing and educating his workplace about his MS, ideas on working with MS and understanding the various options he has in any situation. Additionally, the chapter steered Tim toward an assistance program so he could continue to receive his prescription treatment for MS when he no longer had insurance. “All the programs offered at the MS Society make me feel like I am a part of a giant warm and caring family. At any time I can pick up the phone and talk with the chapter to get information and more importantly, support.”

Among the many influential people in Tim’s life, he considers his wife, Leah, to be the most significant. “Leah always keeps me strong and positive. She does everything in her power to keep me healthy. We do everything together. She is my best friend and my wife. We believe in a lot of laughter and love everyday in life. Together, we are a strong team that will beat MS. She is my iron woman and my hero.”Leah recently trained with Tim and ran her first half marathon.

Leah and Tim have been participants in Bike MS since 2005. “My wife and I ride in the Bike MS Bay to Bay Tour every year and raise funds to find a cure for MS. We ride with some of the most amazing people on the planet, those that care to help us in the MS family. It is truly amazing how many people come out to support such an incredible and inspiring event. Not only does this event help those of us with MS, it helps the families and friends of those connected to someone with MS feel more secure knowing we are in good hands. The hard work of raising funds will truly pay off when you get responses and donations.”

Tim has found many ways to help manage his symptoms. Most importantly, he believes in staying healthy both mentally and physically through exercise. “Exercise helps to reduce stress and makes me feel good about myself and most importantly keep me positive.” Tim finds joy in swimming and was fortunate enough to be able to run for the first six years after his diagnosis. He completed a full marathon and five consecutive half marathons before his MS “took control” of his right leg.

In addition to his loving and supportive wife, Tim finds his strength with his family and friends, many of them who live back east in New Jersey. “When I first told my brother about MS, he was already on a flight out to California before I could hang up the telephone. We surfed and surfed and changed the name MS to the ‘MORE SURF DISEASE.’”

Written by volunteer Leslie Christofferson

Tonetta's Story

Tonetta Harris was at work as a 911 dispatcher for the California Highway Patrol when all of a sudden things went black in her right eye. “I’m going blind,” she thought, “I’m only 26 and I can’t be going blind.” Within minutes, the vision in her right eye returned. She pressed her fingers to her temples, willing the pain in her eye to go away.

She now knows that she had optic neuritis, a hallmark symptom of multiple sclerosis, and describes the next six months of her life as a “mystery” that included visits to several specialists before her neurologist diagnosed her with MS on April 18, 2006.

That spring, Tonetta was at a restaurant with a friend when she spotted someone wearing a Walk MS t-shirt. She remembers, “I spoke to them for awhile, and promised myself I would do Walk MS every year.” Tonetta’s kept that promise, and since then her team Toni Tone has grown to a high of 122 participants (this year), including virtual walkers. She admits, “I’ve only put a Walk MS team together, I can’t imagine what it would be like to organize Walk MS, or Challenge Walk. The people at my chapter are truly dedicated it’s not just their job, it’s their passion.”

Tonetta’s done the MS Challenge Walk (“Toe-Knee Tone”) for two years, and says, “At the event, it’s amazing to see all the people. Maybe they only know one person with MS. You see strangers coming together for a common cause, and meet people who become your friends forever.”

She’s made another promise: “On the tenth anniversary year of my diagnosis 2016 I will do Walk MS, Challenge Walk, and Bike MS,” and sends a thank you to that one person wearing the Walk MS t-shirt who made such a difference in her life. If you’re at Walk MS, or Challenge Walk, make sure you say hello to Tonetta. For her, it’s the connections that make all the difference.

Tricia's Story

Since the age of 12, Rancho Bernardo resident Tricia Chandler has experienced intermittent optic neuritis, eventually losing vision in her left eye permanently. It wasn’t until she reached age 24, and nine months after the birth of her son, Jake, that Tricia was diagnosed with multiple sclerosis. “Initially I was very scared scared of the uncertainty of what MS might take from me,” says Tricia. Within three months, Tricia was a single mother living with this unpredictable, often disabling disease.View a video about Tricia.

Since her diagnosis, Tricia has experienced everything from left-sided weakness and numbness to slurred speech andbladder dysfunction. She says, “I cannot walk very far without my left leg going numb. I have cognitive dysfunction, mostly affecting my short-term memory.” For years Tricia lived with bladder retention issues, but shares, “now I have an implanted device that enables me to empty my bladder.”

Tricia no longer works due to her MS and has fortunately been granted Social Security Disability Insurance. “Though I sometimes feel isolated because I’m ‘sick,’ I get support and help when I need it,” says Tricia. Tricia has utilized the chapter’s equipment resources, received grants for independence and attended several chapter programs including educational seminars for newly diagnosed individuals as well asresearch symposiums.

“It’s important to me to support the National MS Society they support everyone living with MS and fund research that will one day find a cure,” says Tricia who captains Walk MS Team Hope each April and has raised nearly $250,000 over the years. In the last few years Tricia has also gotten involved in Bike MS, seeking corporate sponsorship of the event, fundraising and personally riding a motorized Optibike bike 30 miles in October 2008. Tricia intends to continue her involvement in Walk MS, Bike MS and the MS Dinner Auction, held each November.

Tricia is an amateur photographer who specializes in photos of Jake, newborns and families. “I volunteer at my church as a youth leader, am an MS advocate (talking with others who share my disease) and am an ambassador for my implant sharing my experience with others.”

Jake, now in high school, loves to play baseball and ride his motorcycle. Jake has always been by his mom’s side and says, “I know that Mom is a fighter and she will battle this disease until a cure is found.”

Vikki's Story

It’s Saturday night, the second night of Challenge Walk, and a hotel banquet room is filled with people. The lights dim and the room becomes quiet as each person whose life has been affected by multiple sclerosis lights a candle. Gradually the darkened room brightens, and soon the dining room is filled with candlelight. Watching at a table is Vikki Wissema and her sister, Kitty, who has MS. “If there is anything good about MS,” Kitty says, “you learn who loves you and who you can count on.” And to Kitty, her family’s love is everything.

The first year of Kitty’s MS diagnosis was a difficult one for the large family. They felt helpless as Kitty a wife, mother of four, business owner, soccer team member and soccer coach learned to cope with the disease. One day Vikki’s niece, Nichol, heard about Challenge Walk MS, and suggested the family give it a try. Vikki remembers, “That was 2003, the first year when the three of us me, Nichol and my sister, Terri - crossed the finish line. Kitty was there to congratulate us. She sat in her wheelchair, with a bouquet of roses in her lap.” Challenge Walk would become something to unite them, a family tradition that has lasted a decade.

Vikki’s team Tough Kitties is composed of several family members, and a few friends. She says, “My son, Robert, walked with us last year and his son my grandson, Christian walked with us for the first time last year. He was so happy, because he was 12 years old, finally old enough to register and walk with us!”

Vikki notes that it’s hard to fundraise in this economy, and it’s harder and harder to get donations. Ten years ago her team decided to have a yard sale, and once again they got to work on a project that has grown over the years. Recently, the entire contents of a home were donated, with all proceeds going to Challenge Walk. Vikki laughs, saying, “That’s a lot of sorting, packing and pricing.”

Kitty’s diagnosis has changed the family, made it stronger. Vikki says, “Kitty’s sisters and my mom have come to not only love her more, but respect her for how she is living with this disease. She has shown us how she handles this with dignity and grace.”

This year, there’s no doubt that team Tough Kitties will make it to the finish line and, once again, Kitty will be there to meet them.

Professional Counseling

At 21 years old, vibrant, independent Jen struggled to get her doctors to listen to her - Professional Counseling she was so young and appeared to be healthy. However, Jen’s on-and-off symptoms of vision impairment, numbness, fatigue and problems with concentration led to testing, and, in 2006, a diagnosis of multiple sclerosis.

Within a few weeks of her diagnosis, Jen reached out to the Chapter for information. At the time, Jen didn’t request services as she was very active, keeping busy with work. Jen became involved with the chapter through occasional volunteering at events.

Then Jen had an exacerbation, possibly brought on by stress. She was forced to stop working. The medication she’d been prescribed for her MS wasn’t helping her symptoms, and it made her depressed. Her family recommended counseling. Jen’s health insurance wasn’t covering her expensive MS medication, and she was not hopeful that it would cover counseling.

Jen discovered that the chapter provides counseling, and began weekly sessions with a Chapter funded therapist. “The therapist already understands MS I don’t have to waste time educating her,” says Jen. “She is resourceful and helps me understand or overcome challenges I bring up, and beyond that, she’s easy to talk to.”

Since starting therapy, Jen is coping very well with the diagnosis and all the problems attached to it (employment, disability benefits, doctors, etc). “MS is not the sole topic we discuss. We talk about relationships, work, everything - because it all relates to MS in the end. MS changes life, self-image, relationships with others...everything,” says Jen.

Since she began counseling, everyone close to Jen has commented to her on the positive change. Jen says that she now feels better able to cope with stress, and that now she “has a handle on things.” The Chapter will continue to provide counseling until Jen and her counselor feel that their work is “complete.”

We Can Help

When first diagnosed or struggling to adapt to life with MS, people may feel disbelief, fear, anger, depression and guilt. However, emotional health needs are often overlooked. The Pacific South Coast Chapter’s Counseling Program is designed to address the emotional needs of people and families affected by MS.

Mental health professionals who understand MS are provided at no cost to clients. Services are short-term: up to 12 hour-long sessions (~$1,800 value).

In Orange County, counseling is provided by independent community therapists. The chapter’s partnerships with Jewish Family Services of San Diego and a Licensed Clinical Social Worker in Imperial Valley make counseling available throughout the territory. Other local therapists are referred if required to better meet clients’ needs. Contracted therapists are educated and trained on how to work with clients living with MS.

To become eligible for the Counseling Program, contact the chapter at 800-344-4867 and press ‘1’. The chapter is currently funding about 40 clients (480 counseling hours) each year. With additional funding, the chapter could expand the Counseling Program to assist more families. To donate, call 800-344-4867 and press ‘2’ or give online.

Press Contacts

Jessica Ishikawa, Senior Director, Marketing and Information Systems
760-448-8409 jessica.ishikawa@nmss.org
Rick Griffin, Public Relations
619-461-3104 griffinpr@aol.com

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